Data Collection Begins in Nordic Multicentre Study on Endoscopic Third Ventriculostomy
Sondre Tefre, Alexander Lilja-Cyron & Marianne Juhler
Data collection has started in our retrospective multicentre study aiming to create a prognostic model predicting the outcome of endoscopic third ventriculostomy in adults. All neurosugical centres in Norway, Sweden, Denmark, and Finland are contributing to the study as part of the Nordic Young Neurosurgeons Research Collaborative (NYNReC).
Project background
Endoscopic third ventriculostomy (ETV) is becoming an increasingly widespread treatment for hydrocephalus. However, research on the procedure is largely based on paediatric populations.
In 2009, Kulkarni et al. created the ETV Success score to predict the outcome of ETV in children. Similar studies are currently lacking in adult populations. We are collecting retrospective data on all adult patients (≥18 years) treated with ETV at the participating centres between Jan 1st, 2010 and Dec 31st, 2018, with the aim of creating a prognostic model for use in an adult population.
The ability to predict who will benefit from an ETV will allow better primary patient selection both for ETV and shunting. This would reduce additional procedures due to primary treatment failure. A success score specific for adults could also be used as a communication tool to provide better information and guidance to patients.
About NYNReC
The project is carried out as part of the Nordic Young Neurosurgeons Research Collaborative (NYNReC). NYNReC is an intiative to facilitate high-quality multicentre research in the Nordic countries, resulting in increased sample size and impact of studies. Thus, all neurosurgical centres in Norway, Sweden, Denmark, and Finland are contributing to the study as part of this collaboration.